Care Services Coordinator

SUMMARY: Established in 1985, The ALS Association is the only national nonprofit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships. The Association builds hope, and enhances quality, of life while aggressively searching for new treatments and a cure.

Care Services Coordinators will provide comprehensive and professional services, community resources, and disease management to people with ALS, their families, and caregivers within the scope of their catchment area.

*This position is currently a hybrid position and will have remote work in clinic or direct services, as well as occasional travel to our offices in Richmond and/or metropolitan D.C area. This position serves our Hampton Roads, Virginia territory area.

* The COVID-19 vaccination is required for all employees.

ESSENTIAL DUTIES AND RESPONSIBILITIES.

• Grow and expand knowledge of ALS and awareness of The ALS Association.
• Identify and develop local and regional resources including healthcare providers, agencies, companies, and community partners.
• Build and maintain relationships that help people living with ALS access care according to evidence-based best practices.
• Assess both physical and psychosocial needs of ALS patients and families, based on knowledge of ALS, the disease, and its ramifications.
• Provide health education and outreach to patients, caregivers, families, and community healthcare professionals.
• Possess a strong positive work ethic that embraces a culture of teamwork.

CARE SERVICES 

• Conduct specialized care consultations and needs assessments for people living with ALS, caregivers, and families in a variety of settings including office visits, by phone and email, in clinic, at resource support groups or at a home visit, when appropriate.
• Plan and schedule so that services are delivered as effectively and efficiently as possible to meet the current Chapter goal of at least one significant contact each quarter, as deemed appropriate, with each person living with ALS.
• Respond to individuals with ALS, their families, and caregivers no later than 24 hours of receiving a call or email.
• Act as a patient advocate to help people living with ALS, caregivers, and families obtain equipment, services, and care to improve quality of life.
• Connect people living with ALS, caregivers, and families to Chapter Care Services programs and community resources.
• Recruit and train volunteers for patients and families.
• Educate and inform the general public and professionals about the nature of ALS, its management, related research, and the existence of services of The ALS Association.

ADMINISTRATION

• Update the Director, Care Services with respect to local community resources and educate patients and families regarding available resources.
• Attend quarterly Care Services staff meetings at the Chapter’s Administrative Office, Virginia Regional Office, and other locations throughout the territory.
• Identify walk team or donor prospects to benefit the Chapter fundraising program.

PROGRAM MANAGEMENT 

• Facilitate resource support group meetings, engage participants, and schedule speakers as appropriate to meet the needs of the group.
• Serve as a member of the ALS Clinic multidisciplinary team and function as the liaison between the Clinic and the Chapter.
• Use established policies and procedures, guidelines, and records case notes in a timely manner.
• Participate in Care Services program measurement and evaluation.
• Contribute to the multi-state Care Services team and work with other Chapter staff on additional projects as directed.
• Other duties as assigned.

QUALIFICATIONS:

• Bachelor’s degree in social work, nursing, public health or related area, Master’s preferred. Occupational therapist, physical therapist, speech therapist or direct experience working with the ALS population is a possible consideration.
• Ability to work independently with little supervision; must be a self-starter.
• Knowledge of ALS is a plus, but not required.
• Knowledge of Medicare, Medicaid, patient assessments skills, planning and case management preferred.
• Commitment to organization and highly efficient and conscientious about thorough follow-up.
• Skilled communicator, with superior interpersonal, verbal, and written skills.
• Able to handle confidential information and maintain high confidentiality.
• Excellent organizational and writing skills as well as diligent attention to detail.
• Employee must be able to lift or move up to 25 pounds.
• Excellent computer skills. Proficiency with Microsoft Office products and Raisers Edge or other databases
• Must possess valid driver’s license. Required to travel.
• Ability to work night and/or some weekends as required. Must be willing to travel throughout the DC/MD/VA area.

All Care Services Coordinators/Social Workers are expected to be up-to-date on aspects of ALS and it management, coping skills, issues of death and dying and bereavement, related drug trials and research, information on Social Security, Medicare, Medicaid, Veterans’ benefits, and insurance practices and issues that may impact those with ALS.

The Chapter does not provide medical advice relating to diagnosis, medications, clinical trials, and treatment modalities. Care Services Coordinators may provide information about the above, emphasizing the necessity of the patient to consult with his/her physician and follow the recommended course of action prescribed.

The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities, or requirements.

All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability or protected veteran status.

The ALS Association endeavors to make www.als.org accessible to any and all users. If you would like to contact us regarding the accessibility of our website or need assistance completing the application process, please email onlineaccommodations@alsa-national.org. This contact information is for accommodation requests only and cannot be used to inquire about the status of applications.